2nd Asia-Pacifiic Lysosomal Conference 2019

3rd August 2018 - A summary of recent developments

After a lot of activity on this issue over the past 6 months, a phone conference was held with a number of other support groups that are interested in these difficulties with medicine access, to brief them on the work done. This resulted in support for the approach taken and thanks to LDNZ for the leadership taken on the issue. The groups involved endorsed a joint approach from LDNZ and NZORD to pursue these issues on behalf of the groups interested.

Here is: