Samantha Lenik and patients with Pompe and Fabry disease and their supporters delivered the petition to the government yesterday requesting that the government look under urgency to ensure Pharmac has enough funds to properly deliver on the rare disease drug policy.
Here the the media interviews:
CheckOrphan (link no longer active): The presentation of the petition made it to CheckOrphan
Samantha and the affected patients along with LDNZ thank everyone who participated in the signing of the petition and left some truly amazing comments that we will be forwarding onto Pharmac. Thank you everyone.