LDNZ Performance Report for 2017 can be found here.
April 2017 newsletter
Here is the link to our very latest newsletter.
Pharma Company gives up on Pharmac
After many years of advocacy and Genzyme trying to work with Pharmac to fund Myozyme for our NZ patients with Pompe disease, the company has finally given up and is compassionately funding four Pompe patients. Read our press release.