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Contact Us
Field Officer/Administrator:
Jenny Noble
16 Woodleigh Place
Ohauiti
Tauranga
New Zealand
Ph 07 544-8868
Email jenny.noble@xtra.co.nz
Charities Commission Registration CC24962
Past Activities
Charity Dinner 2009
Charity Dinner 2008
John's Journal
Between 1997 and 2004, John Forman kept a diary of his efforts to promote research and improve information and clinical care for lysosomal storage disorders and to develop LDNZ. It is written as a record of events and contacts and to assist those with an interest in rare disorders and support group development. After the first few years it expands into discussion of the development of NZORD, the New Zealand Organisation for Rare Disorders.