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Contact Us
Secretary:
Jenny Noble
16 Woodleigh Place
Ohauiti
Tauranga
New Zealand
Ph 07 544-8868
Email jenny.noble@xtra.co.nz
Conference Reports
- Joanne Labedzki – National Tay Sachs and Allied Diseases, Boston, April 2009
- Kate Linterman – 12th International Congress on Neuronal Ceroid Lipofuscinosis (NCL), Hamburg June 3–6th 2009
- Ra Timms – 4th BDSRA Conference Kingscliff NSW, Friday 26th–Sunday 28th October 2007
- Lynda Dougan – 4th BDSRA Conference
- Lorraine McKinnon – NZORD Conference 2007 1st–2nd November 2007
- Marianne Hannagan – NZORD Conference 2007
- John Dernie – 2nd International Conference for IMSRD Ann Arbor, Michigan, 2007
- Various families – 11th National Australian MPS Meeting in Brisbane 28th September–1st October 2006
- Emma Graham – Cystinosis Conference, Mandurah City, Australia, September 9th and 10th 2006
- Sharon Noble – First International Education Conference for Batten Disease Sweden 3rd–6th May 2006
- Gina Murray – National Tay Sachs Conference April 2006 Alexandria, Virginia, United States
- Jenny Noble reports on her trip with her daughter Sarah to meetings of the ISMRD Board and a workshop on Glycoprotein storage diseases, in the USA, April 2005.
- John Forman - the MPS/Lysosomal Diseases conference in Mainz, Germany, June 2004
- Jenny Noble - the April 2004 Glycoprotein storage diseases conference, Washington
- Laurie Hill - the International Pompe Association conference, October 2003
- A brief report on the September 2003 1st National Conference of Lysosomal Diseases New Zealand, held in Auckland
- Freda Evans - the International Pompe Association conference October 2002
- Lynda Morrell - the Australian MPS conference April 2002

