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Contact Us
Field Officer/Administrator:
Jenny Noble
16 Woodleigh Place
Ohauiti
Tauranga
New Zealand
Ph 07 544-8868
Email jenny.noble@xtra.co.nz
Charities Commission Registration CC24962
Latest Additions
Latest Additions
Latest newsletter
December 2011 (pdf file)
Pompe Patients March on Parliament
Delegation turned away from Parliament
Read our request to the Prime Minister
Keep up to date with our campaign activities
Campaign kicks off to get enzymes funded by government
Another call to action for all Lysosomal families – June 2011
Annual report
Our annual report for 2009–10 (pdf). With commentary up to our last Annual Meeting held February 2011