Chairperson: John Forman 125 Cuba St Petone Lower Hutt City New Zealand Ph 027 240 3377 Email firstname.lastname@example.org
Field Officer/Administrator: Jenny Noble 167 Hollister Lane Ohauiti Tauranga New Zealand Ph 021 548 318 Email email@example.com
Rare Disease Epidemiology - 2nd Edition
In mid-2017, John was invited to write a preface for a book called Rare Diseases Epidemiology, which concentrates on the work done for LDNZ and ISMRD and talks about what patient advocates can achieve.
Here's the link to the PDF or you can pay for and download the book here.
LDNZ Performance Report for 2017 can be found here.