Chairperson: John Forman 125 Cuba St Petone Lower Hutt City New Zealand Ph 027 240 3377 Email firstname.lastname@example.org
Field Officer/Administrator: Jenny Noble 167 Hollister Lane Ohauiti Tauranga New Zealand Ph 021 548 318 Email email@example.com
LDNZ Performance Report for 2017 can be found here.
Here is the link to our very latest newsletter.
After many years of advocacy and Genzyme trying to work with Pharmac to fund Myozyme for our NZ patients with Pompe disease, the company has finally given up and is compassionately funding four Pompe patients. Read our press release.