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Contact Us

Field Officer/Administrator:
Jenny Noble
16 Woodleigh Place
Ohauiti
Tauranga
New Zealand
Ph 07 544-8868
Email jenny.noble@xtra.co.nz

Charities Commission Registration CC24962

Welcome to the website of LDNZ

LDNZ is a support group for families affected by lysosomal storage diseases.

In this website you will find

  • a description of lysosomal storage diseases
  • details on our group, including our objectives, charitable status and activities
  • stories prepared by affected families, including links to some personal websites
  • contact details for lysosomal storage disease support groups around the world
  • copies of our newsletters and conference reports
  • links to major pharmaceutical companies involved in developing and producing therapies for lysosomal storage diseases

Lysosomal storage diseases

Lysosomal storage diseases are inherited genetic defects that result in an enzyme deficiency, which prevents cells from performing their natural recycling function. This leads to a variety of progressive physical and/or mental deterioration. Approximately 180 New Zealand families are currently affected. Find out more here.

Contact us

If you have any questions or comments, please send us an e-mail.

Latest Additions

Latest newsletter

December 2011 (pdf file)

Pompe Patients March on Parliament

Read our press release here

Delegation turned away from Parliament

Read our request to the Prime Minister

Keep up to date with our campaign activities

Campaign kicks off to get enzymes funded by government

Another call to action for all Lysosomal families – June 2011

Annual report

Our annual report for 2009–10 (pdf). With commentary up to our last Annual Meeting held February 2011